Showing posts with label Quote of The Day. Show all posts
Showing posts with label Quote of The Day. Show all posts

 



"McABAs" is my own created term to refer to the low-quality, murky billing practices, mass produced interventions ("cookie cutter" programs), undertrained or nontrained RBTs, and overworked and harried clinicians, kind of ABA providers.


Similar to how when your body is hungry and in need of sustenance, I don't recommend reaching for a greasy fast food bag of empty calories, if you are in need of high-quality, professional, ethical behavior analytic services I don't recommend calling up a McABA.





The problem is, low-quality providers may not look/seem like a low-quality provider. Unlike fast food chains, you can't just look for the obvious golden arches or the blatant drive thru window.


As a caregiver, parent, or person seeking ABA services for themselves, it is critical to learn to weed through your options, weigh one place against another, and look for red flag concerning signs and indicators of a low-quality provider.



The following resources should help:


https://www.iloveaba.com/2018/04/weeding-out-bad-youre-fired.html


https://www.iloveaba.com/2012/10/choosing-aba-agency.html


https://www.iloveaba.com/2011/08/how-to-have-very-short-career-in-aba.html


https://www.iloveaba.com/2021/07/choosing-aba-provider-pt-ii.html


https://marybarbera.com/tameika-meadows-finding-good-aba-therapy/











"The mind is not a vessel that needs filling, but wood that needs igniting" Plutarch


"Autism isn't something a person has, or a shell that a person is trapped inside. There's no normal child hidden behind the autism" J Sinclair 


There used to be a school of thought in the Autism world that the individual was somewhat of an "empty vessel" waiting to be filled. A blank slate, trapped within a hard to understand shell and wanting to emerge.


No. 

And what a harmful, disparaging view of individuality.


Autism is not being without/lacking, it's being differently tuned with interacting with the world, environment, people, and situations. 

It's sometimes being MORE when the situation calls for less, or being LESS when the situation needs more....Less attentive, less sensitive. Or possibly more attentive or more sensitive. 

There is no one clear way to be Autistic. 

What is super important to know is that every client you work with already is full of information and knowledge when you meet them. Some cannot share or demonstrate that knowledge, but that doesn't mean it isn't there. Or maybe they show it in a way you aren't used to, or aren't prepared for. 

Regardless, the capacity to learn and grow is within all of us. 

 



Today's quote is from...me! From a recent podcast interview with Dr. Mary Barbera:

"Good ABA start with parents. So, for any parent or caregiver, if you are trying to determine a quality place for your child to receive ABA services, you really have to start by looking at what's the goal of intervention. I really feel like that's like the foundational first step, because if you are speaking with a company or a provider and they're talking about: 'We're going to fix this, we're going to correct blank, we're going to make your child more.../ We're going to remove stigma',  and other words like that, all of those words are getting at normalization. Which should not be the goal. The goal should not be to magically make it as if your child were born differently. The goal should be to give the client as many supports as needed to contact the things they to need to contact in life. For example, letting people know when you want food, using the bathroom,  attending school, etc., because in certain parts of the world children with disabilities don't attend school. So, we really have to look at what this means for the client and removing barriers to being able to do different things in their life. And then we address each barrier one by one. That should be the goal of ABA. 'We're going to help your child do _____/We're going to make it easier for your child to do ____". That should be the kind of language that is being said by a provider, or by a company.  It should be very, very concerning when you are contacting an ABA provider saying you need help and that provider is instead telling you, 'Here's what we're going to do', and they're not listening to you and they're not taking your input and they're just saying, 'Oh, yeah, yeah, we know what to do. We know autistic kids. Here's the standard protocol. Here's the strategy'. No, that is not how that should work. Absolutely not."



Good ABA services are a must for some people. Yes, people. Not just small children.

It can be a must for disabilities beyond Autism.

It can be a must inside of the classroom.

It can be a must in adult day programs and residential settings.

It can be a must when harmful, destructive, violent problem behaviors are serving as a barrier to least restrictive settings and placements.


ABA intervention at its core, is about teaching new skills and removing barriers that get in the way of learning and being successful in life. NOT a push for normalization.

Quality intervention that is generalized across caregivers and settings, can bring about amazing long-term success and developmental gains.


Take a listen HERE for more tips on distinguishing between good & bad ABA providers.






 

"If you want to see competence, it helps if you look for it"

Douglas Biklen




To presume competence is very important considering the work that many ABA professionals do with highly vulnerable populations who may be unable to reliably communicate/self-advocate and could also have high support needs on a daily basis.

It is important to always place a high value on dignity and self-determination, to whatever degree is possible for the individual (your child, student, client, etc.). What do YOU want to eat (and absolutely NOT want to eat)? Where do YOU want to sit? Is that shirt comfortable? Do you like this school? Are you feeling okay? Are you hungry...tired....ill...bored....sad?  

It may not be possible for the individual to answer questions like this, but to presume competence is to assume that the individual absolutely has an opinion on these matters, even if they are currently unable to communicate that opinion to anyone. Make sense?


Here are more tips on how professionals/teachers/caregivers can work toward intentionally presuming competence:


- Always ask before giving assistance and let the person tell you what you may do to be helpful (for those who cannot tell you, read body language/cues for removal of assent).

- Treat adults as adults. Use a typical tone of voice, just as if speaking with a friend or co-worker. 

- In general do not assume a person can’t read, but also don’t assume they can.

- Speak to the person directly, not the support person, parent, or companion. 

- Don’t assume a person who has limited or no speech cannot understand what is being said around them, or to them. People usually understand more than they can express. 

- Never pretend you understand what is said when you don’t! Ask the person to tell you again what was said. Repeat what you understand. 

- Do not try to finish a person’s sentence, or cut them off. Listen until they have finished talking, even if you think you know what they might say. 

- You might not be able to see someone’s disability. All disabilities are not visible. There are many disabilities that are hidden within a person. 

- Avoid using stereotypes in your thinking. We all have different personalities and our own ways of doing things. To find out what a person prefers, ask them directly (when possible). 

- Offer compliments but avoid giving a lot of praise when people with disabilities do typical things. 

- Avoid speaking for others. Encourage a person to speak on their own behalf. If you must restate something, be careful not to change the original meaning.

- Be mindful of your body language, tone of voice, and other gestures that may influence a person’s decision/desire to please those in authority. 

- A support person should be low-key, almost “invisible” to others. Don’t “over-support.” 

- Let a person make their own decisions. Don’t take over and make decisions for them. It can be difficult for some with disabilities to make quick decisions. Be patient and allow the person to take their time. 

- Focus on what a person CAN do, instead of hyperfocusing on deficits. 

- Find ways to include a person in a conversation. Do not talk about the person to others as if they’re not there/not in the room.



Link to Reference: Curriculum for Self-Advocates

 

"...They discovered that many of the challenges they face daily are not "symptoms" of their Autism, but hardships imposed by a society that refuses to make basic accommodations for people with cognitive disabilities as it does for people with physical disabilities such as blindness and deafness"

"There seemed to be so little information available about raising kids on the spectrum that didn't view Autism as the principal problem to be surmounted, rather than tackling the practical barriers that stood in the way of fulfilling their potential"

'NeuroTribes' by Steve Silberman




Autism is a disability, and a gift. It is a vast spectrum, where the challenges and unique talents are dispersed unevenly, uniquely, and entirely heterogeneously from one person to the next.

For this very reason, it can be insanely difficult to find appropriate resources, therapies/interventions, medication protocols, schools & college programs, or job placements "for" Autistics. What works for one Autistic, will be 100% nonhelpful for a different Autistic. An amazing private school program that serves highly verbal and autonomous Autistic children, would likely be a terrible fit for Autistic children who do not communicate by speaking, are not toilet trained, and engage in self-harming behaviors. Oh, and also the level of support that is successful THIS year, could be too much or not enough come next year.

This is not paint-by-numbers. There is no magic solution.

We must do the hard work, every day, to provide compassionate, individualized, and dignity respecting care and support to the Autistic children, teens, and adults in our life.

No shortcuts.

"Ableism is perhaps the single most important disability-related keyword that exists besides the term 'disability' itself. It represents one of the biggest obstacles that people with disabilities face, and yet the word is not very well-known outside the disability community. If you don’t know this word already, it is a must-have in your vocabulary."

"What is Ableism & How can you be Anti-Ableist?" by Jill Feder




Ableism can be defined as various forms of negative biases and discrimination that people can face because of their actual or presumed disability


It is important to check our own biases, misconceptions, and assumptions when it comes to the individuals we support, teach, train, and work with.

None of us are exempt from this conversation, because even if you may say "Well, I certainly don't have any negative biases or perceptions about Autism", what do you when you confront them at work? Or in the school where you teach? Or if you are raising an Autistic child, hear from your own family members? How do you respond, or DO you respond?


Here are some great examples of ways in which disabled children, adolescents, and adults may face Ableism in their day-to-day life. 

Seeing the problem (awareness), is the 1st step towards standing up to address it or call it out when it happens:

Patronizing language or Infantilizing Autistic adults

"Obsessions/Fixations" instead of "Special Interests"

Person- first language when Identity -first language is preferred

Functioning labels (i.e. low functioning)

Approaching your clients with a "Fix it" mentality, vs a "Support & Assist" mentality

Assuming non-vocal/non-speaking means "cognitive impairment"

Only speaking of Autism as a burden

Over-prescribing therapy or intervention with the goal of Normalization

Teaching "passing" or "masking", instead of person-focused intervention

Talk of "recovery" or a "cure"


Source: Avoiding Ableist language in Autism research

 


Source: www.PatrickMulick.com


Punishment- A consequence that happens after a behavior that serves to reduce the likelihood of that behavior happening again.  


Teaching - The process of attending to people’s needs, experiences and feelings, and intervening so that they learn particular things.


Got it?

Good.



Today's QOTD is an amazing & fun discussion that I had the privilege to join, with the dope people over at: "ABA Inside Track".

"Special interests" are what we used to refer to as "obsessive interests/ritualized play/info dumping" or restrictive, repetitive interests or conversation topics.


If you are an ABA peep, or a caregiver of an Autistic, then you know exactly what I'm referring to. For non-Autistics, it can be hard to understand the intense interest (often to the exclusion of other important tasks and activities) in Toy Story, or Thomas the Tank Engine, or obscure 1970 bands, or construction sites, or objects that spin, or Mickey Mouse Clubhouse.


A unique special interest is an item, show, song, toy, etc., that sparks a very intense, and very elaborate fascination. If there is a toy or figurine, then ALL the figurines must be purchased. If there is a DVD or TV show, then the ENTIRE show must be watched, with 0 interruptions. If the interest is a place or location (such as a special interest of watching garbage trucks), then we MUST go watch the thing, at the place, right now.


There is an urgency to special interests that makes it difficult for teachers, therapists, caregivers, to transition the individual to other activities, or away from the special interest.


So how do we deal with this?


Well, the old way is to try to remove or lessen the fascination. To try to block or put away the interest, particularly if it isn't "age appropriate". To say "no, not right now", or "we're done with that", or "stop talking about that".


But is that the way we should approach this? Is that helpful or healthy, long term? And what does that say to the person with the special interest? Who may not cognitively understand why we CANNOT watch elevator videos on YouTube all day, every day.


Instead, let's talk about ways to include, embed, and incorporate special, unique interests into everyday life. Into instruction, into therapy, into school, into intervention. Think it can't be done?


Well, research would disagree with you. ;-)


Take a listen! This is good stuff.



ABA Inside Track Podcast, Episode 160










*Recommended Reading:


Autistic 'Obsessions' and Why We Really Need Them







 Yup, pretty accurate.




Need more tips? Well, if you want a surefire way to generate clinician burnout, be sure to hire highly qualified, intelligent, and experienced practitioners, and then micromanage them to death.

Lather, rinse, repeat.


 Hiring Managers, Clinical Directors, or anyone in the position to recruit and hire ABA staff:


Everyone wants that Type-A, super ambitious clinician, but what happens when the overachiever hits the wall at 90mph?? What impact will that have on client outcomes?





 "You are not Superman, and you are not Superwoman. Take off the cape."

Tameika Meadows 


Today's QOTD is from an amazing podcast I had the privilege to join: "Shifting Perspectives", hosted by Yolande Robinson.


During the insanity that has been 2020, parents of Autistic children, teens, and adults, have had to repeatedly pivot and navigate new situations when it comes to lack of supports, no access to community providers, increased unemployment, schools or colleges shut down, homeschooling nightmares, increased anxiety, increased depression, and on and on. 

We have all been impacted by this pandemic and global turmoil, but for families raising special needs children there are unique issues and factors that come with the territory. 

What is needed now is encouragement, support, practical strategies, and a reminder that no one should be trying to "do it all" right now. That just isn't possible. Focus on what can be changed and improved, and learn to adapt to what cannot.


Podcast episode link:  Episode 19  "Take off the Cape"









True words.



*Recommended Reading: ABA & "Normalization"




When it comes to ABA therapy services?


Oh yeah.

This is 1000% true.


*Suggested post: Parents We Need You
ABA employers/managers: During this crisis, are you actually listening to your staff? Because without them, there really is no company.





"Leaders who don't listen will eventually be surrounded by people who have nothing to say." 
Andy Stanley
ABA employers: You listening?


'You don't build a business, you build people.
And then people build the business'

Zig Ziglar




What is your work to you?

A daily grind?
A paycheck?
Monotonous?
A place where you are surrounded by incompetent idiots?
Your main source of frustration?


What should your work be to you?


"The place God calls you to is where your deep gladness and the world's deep hunger meet"

Frederick Buechner  




If you are a clinic/business/agency owner, is it important to you that your team looks forward to coming in to work?

If not, then you have no idea the kind of harmful impact a miserable employee can have on their team members, on their superiors, and on the consumers being served.





Some of my BEST decisions were born in failure.
Let it motivate you, not devastate you.
Today's QOTD isn't quite a direct inspirational quote, it's more of a helpful -and important- resource.

From Dr. Mary Barbera, here is a short and sweet vlog on teaching non-vocal individuals to communicate distress due to pain:




For parents and professionals alike, this hits home. I have worked with many kids who had recurrent medical issues or problems, such as frequent colds (which can bring an unpleasant head fog and nose irritation), bowel/indigestion issues, acid reflux, ear infections with painful blockage, etc.

Can you imagine for a sec, experiencing some kind of painful event and not having the means to communicate that to anyone? Especially if you are a child, and cannot just run to CVS and pick up some medication to make yourself feel better. And we wonder why some of our clients get so frustrated or angry??

Taking this beyond physical pain for just a sec, in my own life when I am in a funk/sad, furious, or anxious about something, it can manifest in my body as physical symptoms. Ever heard of "butterflies in your stomach"? Or "a stress -anger headache"? WOO, I've definitely had more than a few of those.
But unlike many of my clients, I have the ability to communicate I feel like being left alone. Or, I can obtain and then ingest medicine. Or, I can choose to postpone tasks until I feel better (i.e. "Guess I'll be finishing up that report tomorrow...").


The ability to communicate not just thoughts & wants, but private events (feelings, moods, sensations, etc.) is SO critical, regardless of age or ability. I consider it a life skill.



“The two most important days in your life are the day you are born and the day you find out why.” 
Mark Twain






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