Monday, October 13, 2014

Bedside Manner





“People don't care how much you know until they know how much you care” 
Theodore Roosevelt

*Super highly recommend reading: On Autism and ABA (no really, go read this)


I was very recently having a discussion with some colleagues about a quite real issue in this field of…lets say a lack of bedside manner. I have posted previously about ABA Haters. While there are some people who are anti-ABA because they truly are against what we do and do not wish to see individuals with special needs receive intervention, there are others who don’t really hate ABA. They hate US. By “us” I mean the professionals who provide ABA services. They find us to be about as enjoyable to work with as sucking on a lemon.

For some families out there, it was after an experience with a not so nice, not so humble, and not so patient ABA provider that they formed their current opinions about ABA as a field. Which is sad, but also upsets me as a professional in this field. I wish I could say that I have never seen or experienced anything even close to the horror stories some of my clients tell me, but…..no. I have experienced:

~Clients who call me with every compliant or concern because my supervisor never returns their phone calls
~Rude and arrogant company owners who won’t come out to my sessions and provide supervision because my client lives in a not so nice neighborhood
~Unprofessional colleagues who tell parents they “aren’t working/trying hard enough” when their child consistently doesn’t make progress, or laugh in a parents face when they ask about GFCF diets
~Unscrupulous agencies who hire direct staff and send them directly into the field after 1-2 days of “shadow” training
~The egotistical BCBA who took me to one of my first IEP meetings and verbally berated everyone at the table, while speaking in an alphabet soup of jargon that no one could understand

 Your role as an ABA Therapist, BCBA, Behavior Tutor, etc., is not to be “The Wizard Who Knows All”. Your role is to disseminate the science, share your expertise, and cooperate with people to teach them the steps to do what you do. I have heard many company owners say to clients “our ultimate goal is for you to not need us….for you to learn all of this so thoroughly that you can implement it yourself”. 

Hmmm, really?
 If that is really the goal then handing a stressed out single mother a 12 page behavior plan won’t meet that goal. Definitely not.

Consider this a call to action to my fellow troops in the field. Strive daily to NOT be the type of professional who views their caseload as “me” vs “them”. The client is not your enemy. They also are not idiots. Do they have your knowledge of behavior and data analysis? Maybe not. What they do have is an impressive data base of knowledge about their child (or student) that you need, in order to do your job. 

Repeat after me: I do not know everything. I need this parent/teacher/staff to work collaboratively with me, and they won't care how much I know until they know how much I care.

To sum it up, here is an excerpt from an open letter written by a parent to any therapist who may work with her child:

You are with my child for an hour, maybe a couple hours or half a day. I am with my child 24 hours, 7 days a week. Do not talk down to me either or good luck to you. I have to hold strong even at 3am and he decides it's time to get up after 3 hours of sleep for me……. When we discuss goals- make them functional for his life at home with me - not just your hour or two hour session. I need to know what works even when we are all bone dead tired or stressed to the max or when we have some down time to cuddle. Until you know what it’s like to be with my child 24/7, don't ever assume your way is best or think I "should" have done something. Cooperation is the key word here.

4 comments:

  1. I am so glad to hear so many more people making these same statements! We can shape ABA into a powerful force of compassion melded with science and we can change the world! Kudos on this blog post!

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    1. I so agree and I wish this was a dialogue more people in this field were having!

      Thanks so much for commenting :-)

      Tameika

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  2. Not sure if my comment posted! I am the mom who wrote the open letter! Just found this :) I have been fed up with many ABA'ers bedside manner for a while. Little known fact- I'm mom to Kreed AND a BCBA ;)

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    1. Hi Erin!

      Welcome, and I love your blog :-)
      Thats so awesome that you are a BCBA, because of your personal insight into what parents are dealing with. Your clients must love you!

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